We would like to gather more information about this ill named "Hemophagocytic syndrome" and find Doctor for second opinion urgently.
My other friend (Nobuko) made message to announce for sharing message.
I would appreciate it if you could see below and share to your friends!!
I'm praying for him speedy recovery from illness.
【Please share my message about my friend's son!】
My best friend's son who suffers from Hemophagocytic syndrome.
It is a rare disorder of the immune system and now he is a severe medical condition.
He is just 1 year and 8 months and lives at Fukushima prefecture, Japan.
Now we looking for good second opinion doctor of this disease in all over the world.
Please tell me if you know some information about that.
【About patient 】
sex:boy
age:1 year and 9 month old
residence: Fukushima Prefecture, Japan
hospital: Fukushima medical university
【About Hemophagocytic syndrome】
There is some detail about this disease from Web site "HISTIORIOCYTOSIS ASSOCIATION"
Click here
【Condition of patient】
There are a lot of Cytokine in his body.
Everyday, he losses of blood over 200~300 ml.
Now he suffers from a lot of complications including Pulmonary edema.
And he started administration of antibiotics and transfusion.
In addition to he started dialysis from January 27th,2016.
His mother contacted with Dr.Hiroshi Nishida who is Professor emeritus of Tokyo woman's medical university and Dr.Naoto Takahashi who works at The University of Tokyo Hospital.
And after that my friend try to contact to famous doctor Akira Morimoto who works at Jichi Medical Hospital.
We will continue look for good doctor of Hemophagocytic syndrome.
If you some information about that, please send message on Facebook or e-mail to me.
I promise tell your message to my friend.
*I deleted address because we gathered enogh information. Thank you so much!!!
Thank you for your cooperation.
February 2nd,2016
NOBUKO NADIA NAKAI
